18 Sep THE LIFE GOD GAVE ME
I have a beautiful life – a blessed life. But it’s not the life I ever imagined I would have – one that included burying my son.
Around the time my husband and I had been married four years, we began to talk about growing our family. We learned in December 2015 that we were expecting our first child. But in January, our excitement and joy turned to disappointment and devastation as I miscarried.
Always one to process out loud and via the written word, on the one month mark of losing our baby, I shared my experience on social media, despite the fact that very few people even knew we had been pregnant.
The response I received was incredible.
So many honored the life of my little one. Moreover, many dear friends called me a mother. This outpouring of support affirmed what my sweet husband said as we drove home from the doctor’s office the day we confirmed the miscarriage. He grabbed my hand and said, “Well, you’re a mom. You loved him, and you were scared for him. I’m pretty sure that’s what parenthood is all about.”
While I was certainly angry with God and confused about why He would give us such a precious gift only to take it away so swiftly, it wasn’t long until He began to reveal a purpose in our loss. Through my willingness to share my experience publicly, I began receiving messages almost weekly from friends and acquaintances who had suffered miscarriages or were walking the lonely road of infertility.
Through my loss, I had been given a platform to share the goodness of God and His grace in the desert place. My husband pointed out that the Lord had clearly prepared this ministry for me, and that from now on, I would have the opportunity to love and support women as they walked this unwanted and painful path. It was not a platform I had asked for or ever desired, but God was clearly intent on redeeming our pain for His glory.
About four months after losing our little one, we were again pregnant. Early signs pointed to a healthy pregnancy, and at 12 weeks, we learned we were having a boy. A perfect little boy who probably had Down syndrome.
Nothing can prepare you for the news that your child will live anything other than a “normal” life. In those early days, we cried and fought fears regarding the quality of our son’s life. We had many conversations about all of the things he would never do. But by the time we got confirmation that Max did, in fact, have Down syndrome, God had begun to fill us with joy and hope. We began reading, researching, and preparing to be the parents of a child with special needs. And we got excited. We were genuinely looking forward to everything that Max and his extra chromosome were going to add to our lives; we began to have conversations about all that he would be and do. God made it abundantly clear He was inviting us on an exciting journey meant specifically for us.
In addition to Down syndrome, Max was diagnosed with two small holes in his heart that we monitored throughout my pregnancy. Around 30 weeks, I requested a 3-D ultrasound, simply because I just wanted one ultrasound where no one talked about what was wrong with Max but simply oohed and awed over how cute he was. That day, we learned that he had fluid in his abdomen and severe swelling on his neck and face, a condition called Hydrops Fetalis. Despite the bleak prognosis I discovered on Google, our doctors were hopeful that Max’s issues would be treatable after what would likely be an early birth.
Maxwell Spencer Martin was born at 4:14 p.m. on Dec. 27, 2016 and went home to be with Jesus moments later.
It’s been eighteen months now since we said hello and goodbye in the same breath to our precious son. I’ve aged a decade in that time; and every day feels like I’m walking around with a missing limb. I still have moments of very intense anger, pain, and devastation. I’m frequently caught off guard by the depths of the grief I continue to navigate.
But every day also draws me closer to my Savior. Before Max, my faith was authentic, but much of it was intellectual and knowledge-based. I had experienced a few close encounters with the Lord where I felt His presence intimately, but I had no idea what depending on Him daily for strength meant.
A piece of me is missing – and always will be on this side of eternity – but the Lord is truly enough to fill every space in my heart. I can look any person in the eye and tell them with deepest conviction that “He heals the wounds of every shattered heart” (Psalm 147:3).
Not only can I now speak of the Lord’s provision in the desert place, but I do, daily. The ministry I thought He had given me after my miscarriage has grown tenfold since Max. Thousands have been touched by Max’s story. I now have the privilege, through an incredible ministry called Hope Mommies, to serve and love other women as we learn to live in the aftermath of losing a child – as we embrace the life the Lord has given us. Not only that, but I’ve also been given the incredible opportunity to honor and celebrate Max’s life through serving on the Board of Directors for the Down Syndrome Guild of Dallas.
Still, despite the fruit I have seen in this season, given the choice, I would take Max back in a moment
I would trade every way I have grown spiritually and every person I have been able to encourage and support if it meant more time with my precious boy. But that is only because I am selfish and would choose my happiness over my holiness.
But His thoughts are not my thoughts, and His ways are not my ways (Isaiah 55:8). God alone measures out my days and writes my story.
Paul says in 1 Corinthians 7:17 that “each person should live as a believer in whatever situation the Lord has assigned to them, just as God has called them.” And this is the life He has given me. Each day I must choose to get out of bed and embrace this life – that of a wife and bereaved mother. But as I live that life, I get to spread His name and His glory wherever I go.
I never would have imagined my life would include the death of my child. I also never imagined it would include starting a blog with my best friends and using my experience as a platform to proclaim the Lord’s goodness over and over again.
And as always, the Lord continues to prove His love and faithfulness in my life. On Max’s first birthday and glory day, December 27, 2017, Spencer and I welcomed his little brother, Lachlan, into our family. Lachlan came into the world screaming and kicking and has filled our hearts with the greatest joy. But as I raise this precious boy and celebrate each milestone, there’s a simultaneous, deep sadness and longing as I grieve the moments I will never share with Max. Lachlan may not know it yet, but he too is marked by Max and will grow up in the legacy of his brother. I don’t know the Lord’s plans for Lachlan’s life or mine. But I do know we will embrace it with open arms.